Overview of PPIE
Patient and public involvement and engagement (PPIE) is a vital for the successful spread of innovation, and in designing healthcare services and research that reflect what matters to patients and the public.
The North Thames GMS are committed to involving members of the public at every level of our work. The North Thames Patient, Public and Carer (PPC) Panel has been established to ensure that the experiences and lay expertise of patients, the public and carers are at the heart of the North Thames GMS.
The Panel is made up of representatives from across the North Thames region, who bring a range of experiences of genetic testing. The vision of the Panel is that all genomic health and care services, innovations and research in the North Thames region are designed and delivered in partnership with our diverse population.
The panel collaborates with the GMS to
- hold open discussions about the challenges and opportunities for genomics in the region
- review and input into transformation projects and genomic service pathways to ensure they best reflect what patients, families, carers and the public consider most important
- and ensure transparent and accessible communications between the GMS and the communities in our region.
The PPC panel is represented on all key governance structures to ensure patient, family and carers’ experiences and voices are heard at a senior level within the GMSA and inform decision making across the breadth of North Thames GMSA activities.
How to get involved
If you are interested in finding out more, seeking advice from our panel or joining the panel, please reach out to firstname.lastname@example.org.
Anyone who has taken part in the 100,000 Genomes Project, the GenOMICC COVID-19 study, or has had a genomic test via the NHS Genomic Medicine Service, whose data is held in the National Genomic Research Library can also apply to join the Genomics England Participant Panel. Carers of those who have taken part are also welcome. To find out more visit Genomics England.